Living with many rare diseases is doubly difficult. Not only can symptoms be distressing, debilitating and life-limiting, but because the diseases themselves are so uncommon, there is often a lack of support, research funding or even medical knowledge.
A rare disease is defined as one affecting fewer than one person in 2,000 and to raise the profile of these less-known conditions this initiative is underway to gather 2,000 pledges of support.
The idea is to create a powerful, contemporary sculpture - by an aspiring British artist - featuring 2,000 hands, each with a supporter’s name. It will be revealed on 28 February 2014, Rare Disease Day, organised by Genetic Alliance UK, serving as a lasting reminder of the importance of combined efforts against rare diseases.
The piece of art will be prominently displayed in a public space, so you will have the chance to go and see your hand in the installation and see who else has helped to make a difference.